I can't
think of anyone who wouldn't benefit from reading this book, From Grief
to Celebration: How One Family Learned to Embrace the Gift of Down
Syndrome. It is extraordinarily well written from the heart of a mother
with three children, including one who happens to have an extra
chromosome.
The
child--who is actually now a young woman--is named Alex. And through
the pages of this book you'll fall in love with her. But I think even
more, you'll fall in love with the author, Margaret "Gary" Bender. In
these pages, Gary bares her soul. She shares every painful, joyful and
revolutionary moment of her experience as a parent, and she does so not
only out of love for Alex--and her family--but also out of what appears
to be a need to advocate for all parents who have children with special
needs.
This
book must be added to the bibliography Gary provides in the chapter
titled "Research," which includes a list of books she sought and read
when Alex was born in 1993. If you indeed have a baby with Down
syndrome, please put Gary's book at the top of your list. You will learn
many things, but you will especially know that you are not alone; you
will learn how to advocate; and you will learn to embrace and celebrate
your child/situation. And as any parent will tell you, just like kids
without special needs, our babies grow up very quickly. You will learn
your Down syndrome child might not do everything like walk and talk and
potty train according to what you thought was normal, but she/he will
learn. And she/he will also teach YOU things you never imagined.
What
makes this book additionally noteworthy for parents with and without
children of special needs, is that Gary allows us to see how universal
the experience of parenting truly is. In other words, I found Gary to be
not only an advocate for parents of children with Down syndrome; but
also, she helps us recognize and remember the individual needs of all
children. In a particularly moving segment of the book, she shares the
feelings of Alex's sister and brother. Her sister's college essay is
well written and very moving.
The
book--a quick read--is organized according to a list of verbs that Gary
believes has defined their experience. As the title suggests, the verbs
begin with "Grief" and culminate in "Celebration." The verbs she uses,
numbered from 1-10 plus the bonus, are relatable to parenting and,
frankly, life in general. I give this book my highest recommendation.
Michele Cozzens
Author: Irish Twins
www.michelecozzins.com
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