I have read numerous memoirs about having a child with Down syndrome. The Shape of the Eye is, hands down, the best one I've read. Where Jennifer Graf-Groneberg's Road Map to Holland was
a lifeline to me in the days and weeks immediately following my son
Finnian's birth, diagnosis of Down syndrome, and major surgery as a
newborn, soothing me and assuring me that the grief I was feeling was
normal and that it would pass in time, The Shape of the Eye examines that grief, without judgment.
Like
so many parents of children with Down syndrome, George Estreich and his
wife were shocked by their second daughter's diagnosis soon after her
birth, and like so many of us, they found themselves suddenly thrust
into the alien territory of raising a child who is different, who
is largely, in an abstract way, seen as defective by society. His book,
which he spent nearly a decade doing research for and writing, is a
personal, heartfelt, often witty account of raising a child with Down
syndrome. More than that, however, it is also a historical account of
what has shaped our attitudes about Down syndrome - the truths,
half-truths, non-truths, contradictions, and paradoxes. This is a book
not only about Down syndrome, but about family, and ethnicity,
preconceived notions, and what it means to belong.
Mr.
Estreich, a stay-at-home dad and a poet by profession, is an extremely
gifted writer. I could not stop turning the pages and throughout the
book often felt as if I could easily sit down with him over coffee and
shoot the shit about Down syndrome, about parenting, about family, about
life.
Five stars. I cannot recommend this book highly enough.
*****
Lisa Morguess
blogs: Life As I Know It
I'm waiting on a copy of this to be found in Indiana. Hopefully, I will come back from vacation to find it at MY library waiting for me. :) I have heard nothing but wonderful things about it and can't wait to read it!
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